February 25, 2015

More Than Enough.

A little over a month ago, we were kneeling to pray in the evening with David's lovely aunt and cousins. His cousin began praying.....and something he said has stuck with me ever since. I think of it almost daily.

He said simply..."We are grateful that we have enough."

When he said this....I was struck so strongly by the spirit. Enough. That word seemed to replay in my mind over and over. At that point, we were just beginning to find out all of the news about our beautiful little baby...and feeling so many different emotions.

At the time, I was feeling like there was so much I wanted to be different. I wanted the doctors to find answers. I didn't want our baby to be facing such difficult trials. There were so many things I wished I could change. I think so many of my thoughts began with "I want..."

I was focusing so much on what I wanted to be different....that I was almost forgetting the wonderful abundance of good we have.

Sometimes, in life.....we might not having absolutely everything we want. We may not have the latest....coolest electronics. We may fall ill. We can break a bone. We might not have the perfect job, the perfect home.....all of the money we want.....or the ease of life we think we want.

But.....I know from my own personal reflection, when you take a step back....you realize that you have enough. 

Enough to get you through every day.  Enough to be happy. Enough to fill your whole soul with love and peace.

Heavenly Father has a beautiful plan for each one of us. At times, when we are struggling...it may not seem so perfect. However....if we continue moving forward....we eventually begin to see what He sees. We see the brilliant rays of happiness that enter our life. In the end...His path for us is much greater than anything we can plan for ourselves.

I am beyond blessed to have an amazing husband. (I know...I sound like a broken record.....but I can't ever fully express how much he means to me!) We have a place to live. Food to eat. Goals we are striving for. The strength of our Heavenly Father. We have received an outpouring of love and support from our family and friends.. And we are pregnant with a perfect little gift from God. We love her more than we could have ever imagined!

And for me....that is enough. My cup runneth over.

For those of you who want an update on our baby...we don't have any 'new' news. We cannot completely know the outcome until our little girl is born. Our doctors have been wonderful in working with us. For now, David and I are continuing to trust in God. We are filled with hope. 

There is power is prayer. There is power in believing in miracles. We would ask that you keep our little girl in your prayers! She still has a couple months of growing to do....time for certain parts of her little brain to keep growing. Time for her to defy all kinds of odds.

We love happy, sunny days!


We got the best visit from my sister and her kids!! Oh, how we love them!

We decided to check out lots of books from the library. We want our little girl to know in advance how much she is loved. (Plus...who doesn't secretly love to read children's books?)

As you can tell....I am still growing! There are days when I can't imagine getting bigger than I am now... Things like exercise and sleep are at times a distant memory.


February 10, 2015

Our Lightning Bolt

Shortly after I posted my last blog....I got a phone call. The doctors wanted to meet with David and I the next morning to go over all of our results.

Every part of me wanted to be so optimistic about the visit....but I felt there was a reason they wanted to meet with us in person. 

The next morning....David and I both couldn't shake the anxious feeling. When we got to the doctors office....I went to the bathroom to pray for the strength to sustain me through the visit. I prayed that whatever was to come....that we could find a string of hope to hold to. Little did I know how much we would need it. 

When they called us back...the nurse let us know the doctor wanted to do one more ultrasound just to get yet another look. Dr. Hales (who has been so great with us) came in and for the next 45 minutes kept looking over her spine and facial features. 

In my mind I thought...."This is a great sign! He hasn't even mentioned her brain." 

After the ultrasound...he told us he wanted to meet with us in the conference room to go over the genetic results and the MRI report from the U. Once we were in the room...a genetic counselor from the U was their via skype....a neonatologist...and Dr. Hales. 

Dr. Hales began reading the MRI report. With every line he read....my heart sank. Her little brain is much worse than we could have ever even begun to imagine. 

Suddenly I felt like my world was spinning. Every part of me had somehow secretly hoped that we would go into the room and they would say..."Well actually...everything looks great! We just looked wrong." 

Instead....here we were. Being told our little girl might not survive for very long. 

We were being counseled about the decisions that lay ahead for us. They told us they wanted us to think about how aggressive or palliative we want to be with her care. 

I didn't even know how to process those words. What was that even supposed to mean? I grabbed David's arm....and tried to fight back the emotions and tears. We needed to hear all they had to tell us. 

The doctors gave us different scenarios of her birth. She may be born breathing....but the rest of her brain vegetative. Or she may be able to breathe....but not have the ability to eat...would we want to keep her on a feeding tube if she is suffering? Or if she isn't able to breath on her own....what would we want to do? On and on it continued....because of her condition....there is no way to be certain of the results....they continued to say. 

In all scenarios they went over...they feel there will likely come a point where David and I have to decide what is enough....and when to let her go. 

Even as I type those words....I can't fully grasp them.. How can we decide that?? I feel like I need a license or something to make that decision. How can we ever be strong enough to say good-bye to our little girl? 

It is so odd...they told us...that every other part of her is perfect. The genetic tests came back normal. There is no known condition that would cause this. They have never seen the brain become so affected the way hers is. Dr. Hayle said....it's spontaneous. Like getting struck by a lightning bolt. 

An hour a half later....We left the office....once again....unsure how to even begin processing. We sat in the car held each other.....and cried. And prayed. And tried to make an ounce of sense out of what we heard. 

In the days that have followed...I think we both have cycled through so many different emotions. At one point....I had reached a level where I was already feeling like I was having to say good-bye to our little girl. I felt like I couldn't wrap my mind around it.

However....because our Heavenly Father is so merciful...He sent me help....through my incredible husband. As we prayed together one evening...David began praying for our little girl. Praying that she would have a fighting spirit. That she would be able to defy the odds that are placed upon her. Praying that as her parents...we would also be able to fight for her. That we could keep believing in miracles.

That hit me like a train. It was possibly the sweetest, most sincere prayer I have ever heard. How could I ever be giving up on our little girl? Of course we would fight for her. Pray for her. Hope. And know that God has power over all things. It is our time to continue to actively trust in Him.

We move forward. We believe in the power of miracles. If the time comes that we need to make those decisions... God will give us the strength to make those.

For now...that gives me hope. Yes....our little girl may be like a lightning bolt. But she is the most incredible lightning bolt to hit our lives. She has illuminated our skies in so many ways. Already....she is a miracle and strength in our lives. Loving her.....praying for her....believing in her has brought me closer to my Heavenly Father. It has humbled me. It has brought me to my knees countless times.

If there are any of you out there who are struggling....if you feel you are hanging by a thread....or maybe you are just having a rough day... Don't ever give up hope. Even if all the signs around you point the other way. 

It is not easy to keep hope. You have to work at it every day. Sometimes even minute to minute. But you don't have to do it alone....God is with you. He weeps with you. He rejoices with you. He will strengthen you. When you have nothing left within you....He will make the difference.

This hasn't been easy for us. There are still so many moments when David and I feel there are simply to many emotions to even process. It is almost a numbing effect. It is in these moments we are carried by His strength. 

There will be hard days ahead.

But there will also be beautiful days.

Happiness can be found even through tears.

So....from now until our sweet little girl comes, we will continue to love. We will love her with all the strength and power of our hearts. 

God is real. Miracles can happen. 

We are so grateful for all of you who have offered prayers on our behalf. There is power in prayer. They truly do give us hope...and strengthen our little girl!

Our journey is just beginning. 

February 5, 2015

The Depth of a Soul.

I stare at the computer screen....trying to find the words to convey all of my thoughts.

David and I have decided that we will share this new journey we are on....no matter how hard or unknown it may be. Even if no one ever stumbles across this.....we want to be able to look back and know we were truly be carried by our Heavenly Father. And maybe....it will help just one person on their own journey..

On January 19th....I had special fetal ultrasound done to take a look at our little girls heart. Because my husband has a congenital heart defect....they just wanted to make sure everything was working right. I went in expecting good news.. But as the doctor kept staring at the ultrasound machine in silence.....I knew something was wrong.

As it would turn out.....her little heart is perfect. But her little brain isn't. The doctor struggled to find the words to tell me what he was seeing. Severe brain abnormalities. He had never seen such abnormalities before. Her little spine that is also affected. And....that she has a cleft palate and lip. He talked about other tests that would need to be done. He tried to tell me what he was seeing...but wasn't quite sure himself....  He was unsure of her surviving after being born. Or...what her quality of life would be. Or the thousand other possibilities that her abnormalities could mean.

I can't even describe that moment. I never realized a heart could ache so deeply...that a mind could be flooded with a thousand different thoughts in one mere instant.

I tried to stay strong. I wanted to hear every word the doctor was saying. I fought back the wave of tears that threatened to break through. David couldn't be there...he had to be at work(after all...we weren't expecting anything to be very wrong).. and I wanted to be able to tell him everything. Lucky for me....my wonderful in-laws were there. The doctor stepped out of the room for a moment....and I lost it. I sobbed into their shoulders.

"Our little girl. Our perfect....beautiful little girl...." was all that kept running through my mind.

The doctor came back in to do an amniocentesis....a test that would help them see if this was a specific syndrome on her chromosomes. As the needle pierced into my stomach....it seemed to match the ache in my heart.

The doctor was so kind. I felt so grateful. He promised to be in contact soon....after consulting with his colleagues at the University of Utah.

It was a surreal feeling to leave....to have received such hard hitting news....and yet hardly seem to know anything. In my mind I thought "I can feel her move so much inside me....she seems so complete....how can something be so terribly wrong?"

I called David. And with a teary...shaky voice....told him the news. I knew it would be incredibly hard for him to receive such news at work...  As a tender mercy for us,  his boss (who we are so grateful for!) gave him the rest of the day off...

Right when I saw David walking toward me with red eyes....I lost it again. He held me while I sobbed. For that moment....with David by my side....I could keep moving forward.

The rest of the week was a blur. We waited....praying for answers....praying for peace....praying for understanding.

As some of the results came back....it opened up even more doors of the unknown. A doctor from the University of Utah contacted us to try and go over what we knew. She said they were searching for a syndrome or diagnosis to help us see what her prognosis will be. The hard part....is that there is so much they didn't know. She gave us the hopeful reminder that medicine doesn't know everything. That even if they find a syndrome or a prognosis...there is much room for things to be on either end of the scale. They needed more images...she had said....and further testing on her chromosomes...which would take a couple weeks.

So we were left again to wait. And wonder. We reached a point where we felt at peace. We felt strengthened knowing that God is in charge. In knowing that He can see what we can't. He knows how special our little girl is.

We had another doctors visit this week....an MRI for the doctors to see a clearer picture of her little brain. However..it feels that with each doctors visit...we find out another part of her brain that is missing or abnormal. The doctor promised to be in touch with us again later this week to go over what they find/think about her condition. From there...she said....we will likely begin seeing a specialist at the University of Utah and deliver at that hospital.

With any one part of her brain that is missing/abnormal...a person can be completely normal. However....with her combination...they are unsure of the result.

The visit seemed to bring another wave of emotions. David and I felt, again, like we were just trying to stay afloat in a giant ocean of the unknown.

Would we have to say good-bye too soon? If so, how do you prepare to say good-bye to someone you love so much? What would she be facing? Would she defy the odds that are placed upon her? If her problems are severe...would we be strong enough to watch her struggle? So many thoughts...once more came flooding to the surface.

So...we've reached the here and now. We still sit in a whole heap of things we don't know. We are waiting for the call to tell us what they find.

Honestly.....this is hardest trial I have ever faced. I have moments where I am scared. Moments where I don't feel strong enough to keep pressing forward. There are moments where my tears seem endless.

However....there have been incredible moments. Moments where I have felt so close to my Heavenly Father. Moments of pure peace and hope. Moments of comfort. Moments of overwhelming love for my husband and our little girl.

Trials are hard. They seem to pull at the very fabric of your heart and soul. But I have come to realize that we are not in this alone. God didn't intend for us to face trials because He wanted to punish us. He knows what we can become. There are so many blessings that He wants to give us.......and sometimes....it is because of the greatest sorrows that we can find the greatest joy. 

One of the most amazing women I know recently gave us great insight. Often times in trials....we have fleeting moments of thinking "Why me....why now?" She said....instead..."Why not you? Why not now?" Heavenly Father believes we have the strength to get through this.

And I believe in Him. 

There is light in the darkness. Sometimes....that light is like the light of the moon...incredibly bright...but still unable to lighten all of the darkness.....We just need to have to have the faith to hold on until sunrise....when we can finally see everything.

We have been so humbled by the prayers and support that have been on our behalf. We feel so blessed to be able to see the hand of the Lord through so many people.

Most of all....I am blessed with the most incredible husband. He is my light and strength. 

I know that the love we have for each other.....and for our little girl is strong enough to see miracles. 



Sometimes we have to turn our minds off, stop trying to figure it all out, and stop overanalyzing and researching everything. When you don’t see the answer in the natural realm, it’s time to stop leaning on your own understanding and choose to trust God.  Sometimes our minds can be a distraction to our “inner sensor.” Our minds can allow fear and dread to distract us from what God is speaking to our hearts.


Our Heavenly Father did not put us on the earth to fail, but to succeed gloriously! --Richard G. Scott